Medical Cannabis for Epilepsy UK

Affects 600,000 people in the UK  |  Guideline: NICE CG137

Medical Cannabis for Epilepsy UK medical cannabis treatment UK
Evidence Note: Evidence strength varies by condition. Chronic pain and epilepsy have the strongest clinical evidence base. Other conditions are treated based on specialist clinical judgement and emerging research. All prescriptions require specialist assessment.

Epilepsy affects an estimated 600,000 people in the United Kingdom, making it one of the most common serious neurological conditions. For approximately 30% of patients, seizures remain uncontrolled despite optimal antiepileptic drug therapy — a condition known as treatment-resistant or refractory epilepsy.

Licensed Cannabis-Based Medicine for Epilepsy

The UK is among a small number of countries with a nationally licensed cannabis-based medicine for epilepsy. Epidyolex (pharmaceutical-grade CBD, 100mg/ml oral solution) received MHRA approval for:

  • Dravet syndrome — a rare, severe form of childhood-onset epilepsy
  • Lennox-Gastaut syndrome — characterised by multiple seizure types and cognitive impairment
  • Tuberous sclerosis complex — where seizures are associated with benign tumour growth

Epidyolex is NHS-funded for these specific indications under NICE technology appraisal TA614 and TA615.

Broader Cannabis Treatment for Refractory Epilepsy

Beyond Epidyolex, unlicensed cannabis-based medicines containing both CBD and THC are prescribed by specialist neurologists for adults with treatment-resistant epilepsy where licensed options have failed. Clinical evidence — including real-world data from the UK CBPM registry — demonstrates meaningful seizure frequency reductions in a subset of refractory patients.

Accessing Treatment

A GMC-registered neurologist or paediatrician (for childhood epilepsy) must prescribe cannabis-based medicines. For adults, self-referral to a cannabis specialist clinic is permitted. The prescribing specialist will review your full seizure history, current antiepileptic medications, and previous treatment responses before determining suitability.

Frequently Asked Questions

Is medical cannabis legal for epilepsy in the UK?
Yes. Epidyolex (pharmaceutical CBD) is a licensed NHS medicine for Dravet syndrome and Lennox-Gastaut syndrome. Broader unlicensed cannabis-based medicines may be prescribed by specialist neurologists for refractory epilepsy where other treatments have failed.
Can children with epilepsy access medical cannabis in the UK?
Yes. Epidyolex is specifically licensed for children with Dravet syndrome and Lennox-Gastaut syndrome, and is available on NHS prescription following NICE approval. Paediatric neurologists can also prescribe unlicensed cannabis-based medicines in exceptional cases.
What is the difference between Epidyolex and other cannabis medicines?
Epidyolex is a pharmaceutical-grade, purified CBD solution with no THC, specifically approved for rare childhood epilepsy syndromes. Other cannabis-based medicines used for broader epilepsy indications are unlicensed preparations that may contain both CBD and THC, prescribed at specialist discretion.
Will medical cannabis stop my seizures completely?
Complete seizure freedom is uncommon with cannabis-based medicines for refractory epilepsy, though a significant proportion of patients experience a meaningful reduction in seizure frequency. In clinical trials, Epidyolex reduced seizure frequency by approximately 40% compared to placebo in Dravet syndrome.

Ready to Explore Your Options?

Our GMC-registered specialists assess each patient individually. Book a consultation to discuss whether medical cannabis is appropriate for your condition.

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